https://www.cbsnews.com/news/what-ha...CNM-00-10aac3a
22-year-old with deadly disease loses disability insurance
Quote:
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Megan Willis lives with cystic fibrosis...her Social Security benefits were terminated and she lost Medicaid. Since she lives in Florida, one of 14 states without expanded Medicaid, she had no other way to get it. Her family can't afford private insurance...Social Security is targeting young people with chronic illness in an effort to reduce the number of people getting benefits...It really is a life or death situation
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https://www.mayoclinic.org/diseases-...s/syc-20353700
Quote:
Cystic fibrosis is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body.
Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. But in people with cystic fibrosis, a defective gene causes the secretions to become sticky and thick. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the lungs and pancreas.
Although cystic fibrosis requires daily care, people with the condition are usually able to attend school and work, and often have a better quality of life than people with cystic fibrosis had in previous decades. Improvements in screening and treatments mean people with cystic fibrosis now may live into their mid- to late 30s, on average, and some are living into their 40s and 50s.
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My take:
Why the **** are we so obsessed with school and work? I’ve seen first hand the brutality of CF. It ****ing rips your lungs apart and
kills you. Is it ****ing possible you might be able to work while being kicked in the ribs five times a day and being water boarded 24/7? Yeah maybe. I just hope we make it to a time when historians will look back on this **** in horror.
If you can’t cut a break for someone with CF you are a cruel piece of ****. How can people with a disease that’s probably going to wipe you out in your thirties be subject to periodic reviews? What the **** else do you need to ****ing know.
Seriously, **** America. This place is a goddamn horror story. This **** is ****ing shameful.