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Old 07-31-2013, 01:30 AM   #31 (permalink)
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Originally Posted by Trollheart View Post
Not sure who "she" is Fred but if you mean Vanilla then I'm going as her guest, not the other way round, so the wedding would have to be in beautiful NZ. If you mean Karen, she's confined to bed so travel of any kind is impossible for her, least of all air travel.

Unless of course I use my Star Trek transporter... But they're so expensive to run!


Yes the wedding shall be in NZ of course. I will send a magic carpet for Karen so she has the ability to travel and join us.

Trollheart, is it really hard for Karen mentally to cope with the illness? Is she quite aware of the full extent of it? It must be so hard not being able to get out of bed.

Otherwise, the Star Trek transporter sounds wonderful.
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Old 07-31-2013, 01:13 PM   #32 (permalink)
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Yes the wedding shall be in NZ of course. I will send a magic carpet for Karen so she has the ability to travel and join us.

Trollheart, is it really hard for Karen mentally to cope with the illness? Is she quite aware of the full extent of it? It must be so hard not being able to get out of bed.

Otherwise, the Star Trek transporter sounds wonderful.
I don't want to go too much off-topic here, but since you were so kind to ask, Jess: Karen understands that basically, her life is over. She'll never again dance, go out with a guy, maybe even feed herself or use the bathroom unaided. It's exceptionally sad, but she has I think accepted it. She is so used now to being in bed I doubt she could really envision any other state of being. Also she gets really tired really quickly, so that when we went to the dentist last week and we were, in all, say about two hours for her in the wheelchair she was dying to get back into bed, whereupon she fell promptly asleep at about 2pm. But then she does this anyway. It's a huge struggle for her to remain awake at times when her body has become accustomed to being asleep.

Example: when a doctor or other visitor is coming up to her, and they say they'll be there "in the afternoon", she may have to wait to go to sleep until they've arrived and that could be an hour, two, three past her "afternoon nap time", and she finds this really hard. I think, although she perhaps doesn't quite grasp that there's a good chance this disease will significantly shorten her life, she fears more my dying before her. Frankly, so do I, and it's a constant worry, but what can you do?

It means of course I can go nowhere, but hey, so what? I wouldn't be able to enjoy myself anyway if she were at home waiting for me to come home; I'd be afraid she'd need me for something. I mean, look at it this way: something as simple as her water bottle falls off the table. Nobody there to pick it up for her so she has to remain thirsty till I come back. Under those circumstances, could you leave your sister on her own?

But her mental attitude is really good, despite everything, and our three cats help to give her something to focus her attention on. She once struggled downstairs to rescue Ritchie who was being beaten up by a neighbourhood cat. She then sat at the bottom of the stairs and when I got back (from the vet with one of our other cats, as it happens) I had to call the Fire Brigade to get her back up the stairs to bed. That's how much she loves and is devoted to our kitties.

Seriously, thanks for the interest and concern. It means everything.
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Old 07-31-2013, 06:16 PM   #33 (permalink)
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I don't want to go too much off-topic here, but since you were so kind to ask, Jess: Karen understands that basically, her life is over. She'll never again dance, go out with a guy, maybe even feed herself or use the bathroom unaided. It's exceptionally sad, but she has I think accepted it. She is so used now to being in bed I doubt she could really envision any other state of being. Also she gets really tired really quickly, so that when we went to the dentist last week and we were, in all, say about two hours for her in the wheelchair she was dying to get back into bed, whereupon she fell promptly asleep at about 2pm. But then she does this anyway. It's a huge struggle for her to remain awake at times when her body has become accustomed to being asleep.

Example: when a doctor or other visitor is coming up to her, and they say they'll be there "in the afternoon", she may have to wait to go to sleep until they've arrived and that could be an hour, two, three past her "afternoon nap time", and she finds this really hard. I think, although she perhaps doesn't quite grasp that there's a good chance this disease will significantly shorten her life, she fears more my dying before her. Frankly, so do I, and it's a constant worry, but what can you do?

It means of course I can go nowhere, but hey, so what? I wouldn't be able to enjoy myself anyway if she were at home waiting for me to come home; I'd be afraid she'd need me for something. I mean, look at it this way: something as simple as her water bottle falls off the table. Nobody there to pick it up for her so she has to remain thirsty till I come back. Under those circumstances, could you leave your sister on her own?

But her mental attitude is really good, despite everything, and our three cats help to give her something to focus her attention on. She once struggled downstairs to rescue Ritchie who was being beaten up by a neighbourhood cat. She then sat at the bottom of the stairs and when I got back (from the vet with one of our other cats, as it happens) I had to call the Fire Brigade to get her back up the stairs to bed. That's how much she loves and is devoted to our kitties.

Seriously, thanks for the interest and concern. It means everything.
Thank you so much for sharing that, I actually think about her at times when I am upset or suffering because she reminds me that I have the ability to live in a way which she is not able to. She sounds like she has a really wonderful heart and is really inspiring for being able to stay mentally happy. I think you are a really wonderful brother for looking after her which means giving up on working or getting out each day. I completely understand why you need to be there and I know she really appreciates it too. I hope she doesn't live in pain?

PM me a reply, I don't want to get anyone upset with a "derailment".
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Old 08-01-2013, 07:43 AM   #34 (permalink)
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TH says "I don't want to go too much off-topic here" finishes his post five paragraphs later rofl.

I'd hate to see what he calls a "long story short".
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Old 08-01-2013, 10:13 AM   #35 (permalink)
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TH says "I don't want to go too much off-topic here" finishes his post five paragraphs later rofl.

I'd hate to see what he calls a "long story short".
Go easy on him DJ, he's an exceptional guy and it takes serious commitment and love to care for someone 24/7. I would rather read his long paragraphs about his life than someone using a gif for every response.
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Old 08-01-2013, 12:05 PM   #36 (permalink)
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Lita's are actually mad comfortable (I have a red pair)
but yeah I'm not even going to dance at my own wedding, **** that
I will dance at your wedding.
All night.
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Old 08-01-2013, 12:06 PM   #37 (permalink)
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I will dance at your wedding.
All night.
Who should I get married under tho, R'hllor or the Seven???? That's what we need to figure out in the meantime
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Old 08-01-2013, 12:52 PM   #38 (permalink)
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My sister got married on Red Nose day so....



We had fun for charity! I do realise I'm standing on the wrong side but that's just cos I'm cool like that .



I wore flats but that's just because I'm so tall, I had natural make-up and my hair pinned to the side in curls . I didn't really get much say because that's what my sister wanted the bridesmaids to have their hair like. It was a really fun day/night
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i havent i refuse to in fact. it triggers my ptsd from yrs ago when i thought my ex's anal beads were those edible candy necklaces
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Old 08-01-2013, 01:01 PM   #39 (permalink)
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I'm just gonna be mad gay here for a second

your figure is amazingggg, dat hourglass figure aoooowww
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Old 08-01-2013, 01:02 PM   #40 (permalink)
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all urs wife.
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i havent i refuse to in fact. it triggers my ptsd from yrs ago when i thought my ex's anal beads were those edible candy necklaces
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Keep it in your pants scottie.
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